Thursday, August 24, 2006

Approach to fibromyalgia


…HA again cautions that she is not a doctor, nor has anyone offered her fabbie bucks to play one on TV, so this discussion is just to add to your databank if you are interested in fibromyalgia, the chronic, debilitating joint pain and fatigue ailment.

…Until the last few years, doctors didn’t even think this was a real disease or identifiable aggregation of symptoms. They thought flighty women got it. Like the vapors or something.

…A woman named Anne Hillebrand wrote to HA and offered her experience. She says yes, fibro does have a depression and obsessive component, but that is a function of the disease and disappears with proper treatment.

…Her doctor, Thomas D. Harris, MD, an internist in Orlando, developed a treatment based on over-the-counter meds. It supposedly thins the body’s hylaluronan, clear fluids in saliva and joints.

…Hillebrand says the thickness of these fluids is not picked up on MRIs and other tests sufferers are offered.

…The details, which are quite complex, are contained on the free site: http://www.fibrofix.com. They are not hawking remedies.

…This site also discusses the use of the over-the-counter cold remedy component guaifenesin to treat thick secretions: http://www.sover.net/~devstar/guai.htm.

…Another site to check out is…http://www.fibromyalgiatreatment.com/.

…HA is cautious about suggesting treatments that sound weird or quacky, so how do we proceed from here?

…This could be a good way to learn about consumer-directed health care.

…Comments, readers?

3 comments:

egcosen said...

I had suffered from fibromyalgia, chronic fatigue syndrome, asthma, allergies, and GERD that came on very suddenly 3 years ago after a series of some unusual occurrences. Thought I was just dealing with a yeast infection, since they had found it growing in my esophagus when scoped. Tried many things, such as: co-enzyme 10, Sam-e, St. Johns Wort, and magnesium. Monitored my carb intake, performed yoga, exercise the best I could, and tried to get enough sleep. I felt like one of my congestive heart failure patients. Had accepted the disease and felt I must just deal with it the rest of my life. My mother also has it, but not as bad. Than I was suddenly introduced to this juice, for which I was not willing to buy. So the man gave us a bottle free. In 3 days my symptoms of all the above were gone. I still have some discomfort in my shoulders, but it is bearable. Please check out www.mymonavie.com/cosentino and read The Story and My Story from the website. Keep in touch. Elisia

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