Monday, January 12, 2015

Migraine sufferers registry

Migraine headaches afflict 36 million Americans. I know people who lie in a dark room for 2 days or near the toilet with their cheek on the cold bathroom tile floor. Miserable!

The World Health Organization says migraines are the third most prevalent health disorder in the world.

Yet, headache research is underfunded--only one class of drugs has been developed in the last 30 years.

Now, the American Migraine Foundation is creating the first Migraine Patient Registry and Biorepository.  This will be an international database of every person with migraine, along with saliva, blood, and other genetic fluids--and brain images.

Senator John McCain's wife Cindy is behind the funding campaign--they hope to raise $36 million for this.

This data, described as a "treasure trove," will be used for research. Similar repositories exist for Parkinson's, epilepsy, Alzheimer's and other disorders.

To find out more, go to
Maybe you can be a part of this if you suffer from this dreadful condition.

No comments: